Online Resources
Bleeding Disorders Association of Northeastern New York (BDANENY)
Offers programs, scholarships, emergency assistance, advocacy and MedicAlert payment. For more information, please call (518) 729-3577
National Hemophilia Foundation (NHF)
For more information, please call (212) 328-3700. NHF offers additional resources, such as:
- Steps for Living is your one-stop resource for information on bleeding disorders for children, adolescents, parents and health educators to promote healthy living for the whole family.
- Victory for Women is dedicated to women who have a bleeding disorder, as well as those who wonder if they may.
- The National Youth Leadership Institute provides youth with leadership opportunities to effect change and positively influence others. Training,educational programs and internships are components to the program.
Hemophilia Federation of America
National organization that provides programs and education.
The Helping Hands Program funds emergency funding requests. For more information, please call (800) 230-9797.
MedicAlert
Contact BDANENY above for payment coverage. We recommend all patients wear MedicAlert. There is a wide variety of styles to chose from. These products are the most identifiable by EMT's. For more information, please call (800) 432-5378.
Colburn-Keenan Foundation
Charitable organization for those with rare chronic illnesses, with priority for those with bleeding disorders. Grants to assist famiiles with socio-economic and insurance related needs. Please select the link to learn more about the Beth Carew Memorial Scholarship Program. For more information, please call (800) 966-2431.
PSI Access
National organization that serves those with rare, chronic illnesses. Assists with health insurance and federal entitlement issues. Funds for health insurance premium expenses.
Hemophilia Moms
Connect with other moms to share expericences and be comforted by a shared understanding.
*See your health care provider for specific medical advice. AMC does not take responsibility for content provided at external link sites.
