Helping people whose daily survival depends on home intravenous or tube-fed nutrition.
Founded in 1983 by Lyn Howard, MD, and her patient Clarence "Oley" Oldenburg, The Oley Foundation provides information and psycho-social support to consumers dependent upon home parenteral and enteral nutrition (homePEN), helping them live fuller, richer lives. Digestive disorders, ranging from cancer to Crohn's disease, prevent these consumers from sustaining themselves through normal eating, making long-term home intravenous or tube-fed nutrition necessary for survival. Consumers have lived on these therapies for more than 30 years.
Information and Support
The Oley Foundation provides its 10,000+ members with critical information on such topics as research, health insurance and medical advances. The Foundation is also a source of support in overcoming the unique psycho-social challenges facing consumers of these therapies, for example, the inability to eat, an altered body image, and the ups and downs of chronic illness. All Oley programs and services are free of charge to homePEN consumers and their families. Programs include the:
LifelineLetter: a bi-monthly newsletter with articles about medical advances and personal experiences, written for homePEN consumers
Regional Coordinator Network: a grassroots network of 70 volunteers -- all homePEN consumers or caregivers -- who run support groups and provide outreach and education at the local level in the US and Canada
Annual Summer Conference: an opportunity for homePEN consumers, clinicians, providers and industry representatives to network and share information and support
Information Clearinghouse: a resource designed to answer questions about homePEN through a toll-free hotline, web forum and video tape library
Toll-free Consumer Network: a networking tool that provides free access to different experienced homePEN consumers around the country, each month
Startup funds for the Oley Foundation were provided by the Oldenburg family. Ongoing support comes from homePEN families, their friends, clinicians and corporations. Contributions are always needed to continue the work of the Foundation. For details on memorial gifts, bequests and other forms of planned giving, contact the Oley office (see below).
The Oley Foundation is a national, independent, 501(c)(3) non-profit organization. All donations are tax deductible to the extent allowed by law. A copy of the Foundation's latest New York State Report is available from the NYS Department of State, Office of Charities Registration, Albany, NY 12231.
Allocation of Support Received:
For more information, contact the Oley office or visit our web site:
The Oley Foundation
214 Hun Memorial, MC-28
Albany Medical Center
Albany, NY 12208
(800) 776-OLEY/(518) 262-5079
Fax: (518) 262-5528