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Dr. Ricki Lewis is a science writer with a Ph.D. in genetics. Her newest book, The Forever Fix: Gene Therapy and the Boy Who Saved It, a narrative nonfiction book from St. Martin’s Press, is arriving in stores on March 13.
In our wide-ranging interview, Dr. Lewis discusses
- How gene therapy can extend a child’s life, in some cases by years
- Issues encountered in deciding whether a child should enroll in a gene therapy trial
- How participants should be chosen for clinical trials
- How problems with the informed consent process initially derailed gene therapy
- "Therapeutic misconception"
- How gene therapy may benefit patients with Parkinson's disease and macular degeneration
The Alden March Bioethics Institute offers graduate online masters in bioethics programs. For more information on the AMBI master of bioethics online program, please visit the AMBI site.